and for that I am sorry. It has been a crazy bit here. I am trying to play catch up but there is a lot to update. So, I’ll just start from this weekend and then try to move forward and back track at the same time! I hope all is well with everyone.
Well, we were all set for a nice relaxing weekened at the new house (this will be a back track post eventually 😉 ). Our main goal? To unpack the kitchen! Then, Thursday night Alyssa didn’t keep down her last feed. Ok…no bigs sometimes it happens. Friday morning she held down her medicine milk ok. Whew. Then, we ran a bunch of errands, came home and I fed her her second bottle of the day. I put her down for a nap and she slept soundly for about two hours. I was outside unpacking with my roomate and her friend when Neil comes and asks for help. She managed to sleep for two hours and then wake up puking. OK ok… get her cleaned up. Feed her again. Same thing. Frick. K. So we switched to pedialyte. No luck. OK lets just wait a bit and see how she does. Stil heaving and then there was the high pitched cry that said “OWWWWWWWWWWWWWW.” Usually, I’d give her a couple days to work through it, but she’s on an oral corticosteroid right now (also another post LOL) which knocks down her immunity. So, I put a call into the doctor… “Bring her in if she doesn’t keep down her night time meds” … she doesn’t.
We get to the ER at about 10 and by 1030 she is hooked up to a hydration IV and having a bunch of tests run. Her WBC count is way up (which is pretty normal for her) but they don’t want to over look a UTI. 3 hours later all the results are back and they discover via x-ray that she is pretty constipated. Get that cleared, run IV antibiotics, and home we go. Except we have to go back on Saturday (yes the fourth of July) to get the second dose of antibiotics. Sounded good at the time. However, it didn’t dawn on me that they are billing seperately for each ER visit or I would have had them admit her because it would have been cheaper and we could have got more sleep LOL!
At any rate, we went back Saturday and waited 2 hours for the 4 second shot that she probably didn’t need anyways… but that is neither here nor there. She hasn’t gotten sick since Saturday morning and after having sunday as a full clear liquid day managed to keep down formula on Monday. She seems back to her old self aside from the typical reactions to antibiotics. Here was the adorable girl waiting patiently at the ER on the fourth of July. She’s getting so big 🙂 . The dress was made by a friend of mine named Lisa. My friend Kim purchased it for her daughter back in 2007 and Alyssa got to wear it in 2008 and 2009! Yay for longevity!
The saving grace? The part that made the whole weekend worth it? Alyssa learned to clap!!! We were snuggling on the couch saturday morning and all of a sudden I glanced down and she was clapping. It is amazing that she figured it out and adorable because it takes so so much concentration for her and she looks like one of those old school monkeys with the cymbals. Each day it seems like it takes her a little less effort to remember how to do it. I seriously still get teary eyed when she does it. It is such a HUGE milestone for someone with the type of brain abnormalties she has. She is just growing by leaps and bounds. I am amazed by her constantly. Here is a video of a few of her awesome talents 😉 to tide you over until I update!