Holy crap! Today was pretty much awesome. She kept the meds in. She kept the food in. I mean REALLY. She took 16 ounces during the day and 12 ounces over last night plus an additional 25 calories from a supplement. What’s more? She only refluxed slightly and as we get her vented really quickly the bubbles just come out that way instead! I cannot wait until the bubbles slow down!
She is so happy. I’m loving it. You can see a sense of clarity in her that wasn’t there before. What’s more is that her seizures are lessening a great deal. She used to have about 20-60 a day and now it seems that she is down to less than five in a day. Her body is a bit more relaxed and she is moving more. It’s an amazing transformation to watch. Her belly is noticeably growing with each passing day. It is seriously going to be bizarre when she gets chunky…oh did you hear me? I said WHEN. LOL. I know there will be ups and downs in all of this, but each day I realize that as hard as the decision was to make… it was one that NEEDED to be made. She is thriving. She is happy. She is relaxed. She is amazing!