Well, OK… so not entirely. Yesterday started off pretty rough. I was in quite the crabtastic mood. I tried to snap out of it but really there is a lot of emotion fueling this situation. It was just a bunch of silly little things that were on my nerves. Not one thing in particular. Like? The fact that there is going to inevitably be stomach acid on every.single.thing. LOL. I was just funky. Then? Like a little slice of heaven today began.
I can’t put into words the level of grateful I feel nearly daily for our roommate. It is amazing to me how the timing, personalities, and every detail just clicked. She? Is good people. Seriously. Well, one of Neil’s favorite bands was playing tonight and she offered to…are you ready… babysit so that we could go. Told him after the mood I was in yesterday she needed me out of the house LOL!! It was something both of us were apprehensive about. I mean… is it a bit irresponsible to ditch your kid a week after surgery? LOL! Well, not when you are leaving her with the one person in your life who you would call if something went awry with the tube. Plus the fact she miiiight have called me and essentially said “GO or you WILL regret it.” So, we went. You know what? Everyone came out of it in one piece. Granted, awake way too late and in one piece LOL! At least she was awesome and didn’t even gripe that the concert went late. Have I mentioned I adore her 😉 .
After we decided to go, I got a call from Early Intervention and they said the physical therapist could make a stop today. Alyssa hadn’t seen PT since we moved so I figured we should squeeze it in. That? May have been the best thing EVER. Seriously, her ability to work with this new PT was AWESOME. Her service coordinator and I have been trying to get her to put stuff in a box for over a year. As soon as we told the new PT … Alyssa picks up these rings and drops them in the box hahaha. Brat. She let the PT stretch her legs and sat up so nice and straight. I’m quite tickled with what the muscle relaxer is doing. She used to be a bit shaky when reaching for things, but now she does it with so much more grace. What’s more exciting? oooh oooh as we were working with the PT the wheelchair place called and they are ordering her chair! I cannot wait! That means we are one step closer to being able to put her on the bus to school in February. I know in my heart of hearts she is going to jump by leaps and bounds in school. Just watching her with Raina’s girls is such an amazing thing. Watching her today with the PT. I am so hopeful that with school, improved PT, etc she will find it in her to walk sooner than we could hope 🙂 . Either way, she’s moving in the right direction!
So, we end the week armed with information, a break from reality, and an exciting new lease on life! Alyssa is getting a bit stronger each day and I can’t even get over the dramatic drop in seizures. I don’t know if it is linked to her hydration level, her med level, or something completely unrelated. What I do know? I LIKE IT!